I can’t say my son had a brain tumor. To be accurate, I say he has a brain tumor. 

Twenty years ago, when Matt was 11, an MRI revealed the growth, clinging to his brainstem, located so deeply within convoluted folds of grey matter, it is inoperable. 

He’s had it for twenty L-O-N-G years.

He’ll have it for the rest of his life. 

I hope that’s a L-O-N-G, L-O-N-G time. 


  • An emerging writer in upstate, NY, Karen DeBonis tells her story on her website, in publications like the NY Times, (a Tiny Love Story), in her “Become Emboldened” projects, and elsewhere. "Portrait of a People-Pleaser and the Son Who Paid the Price", Karen’s transformational memoir about a woman’s quest for authenticity and the courage to speak her truth, is currently available for representation.

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