Brain Tumor Awareness Month. Day X.

Yesterday, I was so busy enjoying Mothers Day, I forgot to write a daily post, which ruined my perfect record so far this month. Now I don’t know what to call this day, so I’ve dubbed it “Day X.” The truth is, I didn’t enjoy all of Mother’s Day. I enjoyed when my son Matt…

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Brain Tumor Awareness Month, Day 10.

Pylocytic astrocytoma was one of the words I introduced in my Day 8 post. It’s the type of brain tumor my son has—benign and slow-growing.  An MRI revealed it when Matt was 11. The doctors didn’t know how long it lay hidden in his brain; it could have been there since birth. I often wonder…

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Brain Tumor Awareness Month, Day 9.

I was so engrossed in revising a draft of my memoir manuscript, I forgot to write an entry earlier today. So here are some random excerpts from my manuscript, and your opportunity to give me feedback. “I wonder who I would be, had my child been perfect like I expected.” (This is currently the opening…

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Brain Tumor Awareness Month, Day 8.

It’s amazing, when you get a diagnosis for which you were unprepared, how quickly your lexicon expands.  Pilocytic astrocytoma and hydrocephalus and third ventriculostomy were three of the mouthfuls added to our vocabulary when our son Matt was diagnosed with a brain tumor.  In the following years, neuropsychological testing and 504 Plan and TBI joined…

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Brain Tumor Awareness Month, Day 7.

I’ve been finalizing a draft of my memoir manuscript—version eleventy-nine thousand or so—and I needed to clarify some dates and facts. So, this morning, I dragged down a blue-lidded bin from the attic. I wanted Matt’s report cards and school work from third grade, when he was eight. That was the year his behavior and…

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Brain Tumor Awareness Month, Day 6.

Years ago, when I first started writing my memoir, I had a working title I thought was so clever, it would become a best seller on the title’s merits alone.  The title was based on the idea that there were no good guys or bad guys in the story of my son Matt’s rumble with…

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When grey matter is the color of your parachute.

  Brain Tumor Awareness Month, Day 5. You know that book for job hunters, What Color is Your Parachute?  It’s a classic, by Richard N. Bolles. Award winning. In print since 1970. Ten million copies sold in 28 countries. Translated into 20 languages. Blah, blah. I read it way back, after college. Really it was…

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Brain Tumor Awareness Month, Day 4.

I can’t say my son had a brain tumor. To be accurate, I say he has a brain tumor.  Twenty years ago, when Matt was 11, an MRI revealed the growth, clinging to his brainstem, located so deeply within convoluted folds of grey matter, it is inoperable.  He’s had it for twenty L-O-N-G years. He’ll have…

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Brain Tumor Awareness Month, Day 3.

Today, I’ll share an excerpt from my memoir manuscript, a section I struggled to revise this morning. You may be able to help me. I mention a 60 Minutes special on OCD, which aired in 1994 or 1995. OCD was one of the many diagnoses under discussion for Matt, before his brain tumor was discovered.…

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Brain Tumor Awareness Month, Day 2

Today, May 3, 2018, my son Matt starts a new job. He’s 31 and has been on his own for awhile, so it may not sound like a big deal, but it is. It’s a big deal because there were times when my husband Michael and I didn’t know what to expect of our son’s…

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