Purpose–it may be simpler than you think.

Image by ArtCoreStudios from Pixabay

I had intended to write a blog last week to process some of my emotional overload, but after starting a draft or two, nothing substantial materialized.

Then, I got caught up in the whirlwind of coronavirus writing and submitting, because there’s so much I want to say and so much that needs to be said and so many opportunities not be squandered and this could be my big break to get a byline in a big mainstream publication and I’d better not blow it.

The outcome after three days of frenetic writing and revising was two essays and a handful of rejections. Everyone, it seemed, was writing about COVID-19. No one, it seemed, was interested in my words.

By Friday, after I submitted my essays one final time each, my thoughts returned to writing a blog. Easter was almost upon us, and, even for those who don’t celebrate, the metaphor of resurrection from darkness was too meaningful to ignore in these pandemic days. Again, I started a draft, but nothing gelled.

My thoughts were dandelion seeds dispersing in the wind, and in my attempt to catch them all, every single seed slid from my fingers.

Then I thought maybe I’d wake up early yesterday, Easter Day, and tap something out. Surely a seed would germinated on Easter, right?

Wrong.

Easter morning dawned on the heels of a few worse-than-normal gut days for me. The morning was another physical and emotional ordeal. By noon, I was so exhausted, I had to lie down.

Usually, when I need a ten or twenty-minute reset like this, it will revive me enough to face the rest of the day. Yesterday, it didn’t. I didn’t know if I could get up. I didn’t know if I wanted to.

I’ve never had a day when I couldn’t get out of bed, when depression or illness imprisoned me so fully that I gave in to the pull of the cocoon under my covers.

Yesterday, I wondered if it would be the first.

But my son was coming over. He was coming to celebrate Easter.

My husband and I had nothing special planned. We got curbside take-out on Saturday, wiped down the containers, and put them in the fridge for Sunday. We planned out our social-distancing-together strategy—where we would sit, how we would handle food distribution, which doors to use or not use.

Steve, our son who lives further away, didn’t make the drive for the weekend as he’s done for years. It was the right choice not to travel. I missed him, but he was safe–that mattered more.

But Matt lives twenty minutes away, and he was coming over. He was my purpose in getting up. So I did.

Please excuse the pun, but I rose from the bed.

I brushed my teeth and showered and got dressed and ate lunch and picked up a little around the house and scrolled through Facebook.

By the time Matt arrived at dinnertime, my gut had settled, allowing me to enjoy our visit. The day that I thought might break me turned out to be a great day.

Sometimes, we just need to find one purpose in the day that won’t allow us to quit, that makes us get up, show up for our day, and crawl through it if that’s all we can manage.

If you think you don’t have a purpose, you are wrong my friend.

For you have read my words. You have given me purpose today—to get these imperfect words onto this imperfect page so they reach your imperfect eyes.

Today, you are my purpose.

You may not think anyone cares if you get up or not, but you may be the very reason someone else rises, too.

If you can rise, I can rise. If I can rise, someone else can rise. And if more of us rise, then we make a statement that all hope is not lost.

The world needs that message right now. The world needs you. I needed you today, my friend, and you showed up for me.

Thank you.

The best self-care: giving to others.

A few years ago when I was visiting my parents, my dad came back from shopping with this. I said, “Dad, that will never be enough for me! And what are you and Mom going to use?”

Are you coronavirus-ed out? Have you had your fill of worry and fear and depressing news? Are you tired of suggestions about what to do as you shelter in place, and reminders to practice self-care?

Me too. It’s why I wasn’t going to write anything about pandemic life. What can I say that hasn’t been said ad naseum?

But here I am, so obviously I’ve reconsidered. I realized I didn’t want to be the writer who doesn’t write at a time when there’s so much to say.

My life these past two weeks isn’t much different than it’s been for the past three-and-a-half years. My gut disorders have kept me sheltered in place pretty much every day. I love my solitude, so isolated life is easy for me.

The biggest change was that my husband Michael worked at home last week. Good news–we didn’t strangle each other, as I feared! The only surreal thing was that a few times he’s run out at the crack of dawn when stores opened to hunt down toilet paper (which I use at a rate of about ten to fifteen times the average. No exaggeration.) Twice, he came back empty handed, but this morning he scored big–eight rolls! That should last me a good two days. (OK, that was an exaggeration. LOL.)

Did you every think, in this land of plenty, that we’d be hoarding toilet paper? And then discussing it on social media, no less?

Now that our TP shortage has been remedied, I’m OK.

But maybe you’re not OK. Many people are not at all OK. I feel their pain acutely, which makes me not OK. It’s a vicious cycle.

I get overwhelmed with wanting to save the world and feeling helpless that I can’t. I wish I had a few million dollars to spare so I could really make an impact.

But that thinking is a trap. I can’t save every person in need, but can I take the edge off this disaster for one person?

YES.

Instead of focusing on what I can’t do, I’m going to identify what I can do. That will make me feel better. It’s a win-win.

I’ve decided that the best self-care I can give myself is to give to others.

I’ll share my plan, not to appear generous, because there are many, many others whose generosity makes mine look like the Grinch’s. I’m sharing to hold myself accountable, and hopefully to generate ideas of small things we can all do.

Here’s my plan:

I ordered disposable diapers online and had them mailed directly to a local food pantry. I saw a Facebook post from this particular agency that gave me the idea. There’s another food pantry I want to do this for. (I’ll call ahead to see if that will work for their limited hours, and I suggest you do the same.)

I’m going to donate blood tomorrow. I used to donate at least four times a year, but when I got sick, I had so much to manage with my gut symptoms, I gave myself a pass. But my blood is healthy and plentiful, so it’s time to share it.

If I get that check from the government–$1,200 last time I heard–I’m going to donate it. (I haven’t yet decided where.) Michael’s income won’t be affected by the pandemic and I didn’t have an income to lose, so, financially, we’ll be status quo. If we’re OK now without that money, we don’t need it. But someone else surely does.

I have other ideas, but I’m going to start with these because I’m more successful when I set manageable goals.

If you are hurting, know that people do care. You may feel invisible, but I know you’re there and I’m wishing the best for you.

What about you? Do you have small ways that you’re helping in these uncertain times?

Self-disclosure of my people-pleasing foibles.

Self-disclosure of my people-pleasing foibles often leads people to tell me not to be so hard on myself. It’s true that I feel mad about the times I didn’t stick up for myself and shame in admitting what I see as a weakness.

But sharing my truth means I can’t hide from it. Once it’s out, I’m confronted with its destructiveness and feel I have no choice but to change.

My self-disclosure is working. S-L-O-W-L-Y but S-U-R-E-L-Y. I’ve written some funny stories about my successes on Facebook. *

And now, another story:

You may know some of the background of this one. If not, the short story is that in May, 2016, I had to take medical leave from a job I loved due to my increasingly disabling and difficult-to-diagnose gut problems. My employer encouraged me to take advantage of their short-term disability policy, which turned into long-term disability.

What a blessing. Not my illness, but the disability benefits. That income took the edge off leaving my job, and helped to cover the thousands of dollars I spent (and spend) on out-of-pocket medical expenses.

Then, in September 2019, I received a call from my disability representative. I’ll call her Mary.

“I’m sorry to have to tell you this,” Mary said, her voice wobbling. I could hear the emotion in her voice and I knew it was sincere. We had become fond of each other in a weird kind of way during our three-year phone relationship. She was always professional and business-like, but with heart.

“Our medical directors have determined that you are no longer eligible for benefits.” She gulped. “Your cased is being closed as of today.”

Shit. I felt my shoulders and chest collapse, and my breath, my hopes, my future squeezed out of me like toothpaste.

I had wondered if I might face a reduction of benefits someday. I’m not bed-bound, after all. I’m not immobile. My mornings always suck, but I can usually leave the house in the afternoon or evening if I need to. I can take care of myself and do household chores and tap away on my laptop.

But I never expected a complete benefit mic-drop without warning.

As crushed as I felt, I also felt bad for Mary. My instinct was to comfort her.

“It’s OK,” I told her. “I won’t starve.” And I blathered on about the benefits being a blessing, and how grateful I was, blah, blah, blah.

I heard Mary typing to transcribe our conversation, like always. It’s her job. I knew she did it and I wasn’t worried because I had nothing to hide.

A few weeks later, I decided to appeal the decision, so I requested my full medical file—all 2,400 pages.

I read, or at least skimmed, most of it. When I came to my final conversation with Mary, I wished I had sewn my lips shut. It sounded like I was overjoyed to be losing my income. Blessing this and blessing that and all kinds of gratitude shit.

Nowhere did it say Client expressed anger and disappointment. Client Cried. Client said it must be a mistake because her health has not improved. Nope. Client was as agreeable as always. I saw it for myself in black and white.

I haven’t received the results of my appeal yet, but I suspect my people-pleasing will work against me. It won’t be the first time. There’s a scene in my memoir when a similar thing happened, only that time, it was a doctor I acquiesced to, and the patient was my son.

So you see why I share these stories. I hope you understand my self-disclosure. I must learn the lessons in what happened. And maybe others will learn, too.

In her book, The Disease to Please, the late Harriet B. Braiker said:

Sometimes we see in others what we can’t see clearly in ourselves.

If you see yourself in my stories, stick around. We’ll figure this out together.

*I tried to link to the exact post, but the cyber-gods weren’t cooperating. If you can’t find the post (or you’re not on Facebook), let me know and I’ll email it to you. And if you are on Facebook, how about following me while you’re there? 😉

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