Brain Tumor Awareness Month, Day 8.

It’s amazing, when you get a diagnosis for which you were unprepared, how quickly your lexicon expands.  Pilocytic astrocytoma and hydrocephalus and third ventriculostomy were three of the mouthfuls added to our vocabulary when our son Matt was diagnosed with a brain tumor.  In the following years, neuropsychological testing and 504 Plan and TBI joined…

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Brain Tumor Awareness Month, Day 7.

I’ve been finalizing a draft of my memoir manuscript—version eleventy-nine thousand or so—and I needed to clarify some dates and facts. So, this morning, I dragged down a blue-lidded bin from the attic. I wanted Matt’s report cards and school work from third grade, when he was eight. That was the year his behavior and…

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When grey matter is the color of your parachute.

  Brain Tumor Awareness Month, Day 5. You know that book for job hunters, What Color is Your Parachute?  It’s a classic, by Richard N. Bolles. Award winning. In print since 1970. Ten million copies sold in 28 countries. Translated into 20 languages. Blah, blah. I read it way back, after college. Really it was…

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Brain Tumor Awareness Month, Day 4.

I can’t say my son had a brain tumor. To be accurate, I say he has a brain tumor.  Twenty years ago, when Matt was 11, an MRI revealed the growth, clinging to his brainstem, located so deeply within convoluted folds of grey matter, it is inoperable.  He’s had it for twenty L-O-N-G years. He’ll have…

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Brain Tumor Awareness Month, Day 2

Today, May 3, 2018, my son Matt starts a new job. He’s 31 and has been on his own for awhile, so it may not sound like a big deal, but it is. It’s a big deal because there were times when my husband Michael and I didn’t know what to expect of our son’s…

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My goal for Brain Tumor Awareness Month.

I don’t set writing goals like other writers, some of whom shoot for daily or monthly word counts, or to finish a chapter, or to post on their website or social media daily.  I don’t set those goals because I never know how many hours in a day, if any, I’ll be able to write.…

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The anomaly of my story.

I almost missed it—National Brian Injury Awareness month, recognized in March. Maybe it wasn’t on my radar because I don’t talk much about my son’s brain injury; I talk of the brain tumor that caused it. They are intertwined in my story, the tumor in and the injury to his brain. Not much of my story…

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Blessings on my memoir.

I don’t even know where to start when I’ve not written in so long. My husband Michael and I were in California visiting my parents. While we were there, I coordinated an 85th birthday celebration for my mom. It was a production—a live digital video virtual party (is that even the right way to say…

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Personal growth in a story I didn't want to tell.

In September 2016, when I realized my short-term disability leave was going to be long-term, I knew it was a gift from the universe and I couldn’t blow it again. The gift was time—time to finish the memoir I began over 15 years ago. When I started writing, I told the story of my son’s…

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