It’s amazing, when you get a diagnosis for which you were unprepared, how quickly your lexicon expands. Pilocytic astrocytoma and hydrocephalus and third ventriculotomy were three of the mouthfuls added to our vocabulary when our son Matt was diagnosed with a brain tumor. In the following years, neuropsychological testing and 504 Plan and TBI joined… Continue reading Brain Tumor Awareness Month, Day 8.
I’ve been finalizing a draft of my memoir manuscript—version eleventy-nine thousand or so—and I needed to clarify some dates and facts. So, this morning, I dragged down a blue-lidded bin from the attic. I wanted Matt’s report cards and school work from third grade, when he was eight. That was the year his behavior and… Continue reading Brain Tumor Awareness Month, Day 7.
Years ago, when I first started writing my memoir, I had a working title I thought was so clever, it would become a best seller on the title’s merits alone. The title was based on the idea that there were no good guys or bad guys in the story of my son Matt’s rumble with… Continue reading Brain Tumor Awareness Month, Day 6.
Brain Tumor Awareness Month, Day 5. You know that book for job hunters, What Color is Your Parachute? It’s a classic, by Richard N. Bolles. Award winning. In print since 1970. Ten million copies sold in 28 countries. Translated into 20 languages. Blah, blah. I read it way back, after college. Really it was more… Continue reading When grey matter is the color of your parachute.
I can’t say my son had a brain tumor. To be accurate, I say he has a brain tumor. Twenty years ago, when Matt was 11, an MRI revealed the growth, clinging to his brainstem, located so deeply within convoluted folds of grey matter, it is inoperable. He’s had it for twenty L-O-N-G years. He’ll have… Continue reading Brain Tumor Awareness Month, Day 4.
Today, I’ll share an excerpt from my memoir manuscript, a section I struggled to revise this morning. You may be able to help me. I mention a 60 Minutes special on OCD, which aired in 1994 or 1995. OCD was one of the many diagnoses under discussion for Matt, before his brain tumor was discovered.… Continue reading Brain Tumor Awareness Month, Day 3.
Today, May 3, 2018, my son Matt starts a new job. He's 31 and has been on his own for awhile, so it may not sound like a big deal, but it is. It’s a big deal because there were times when my husband Michael and I didn’t know what to expect of our son's… Continue reading Brain Tumor Awareness Month, Day 2
I don’t set writing goals like other writers, some of whom shoot for daily or monthly word counts, or to finish a chapter, or to post on their website or social media daily. I don’t set those goals because I never know how many hours in a day, if any, I’ll be able to write.… Continue reading My goal for Brain Tumor Awareness Month.
It's a rainy spring day here, which reminds me of my true earthworm story that I shared last year. You can read it below. I'm amazed to see that I left out a critical part of the story, about why I left my job, a decision prompted by earthworms. (Yeah, just read the story.) It's… Continue reading Earthworms have it so great.
Today, I'm expanding my writing world by attending a session of the New York State Writers Institute to hear Cokie Roberts, illustrious journalist and broadcaster, speak on Writing about Women's History. The only women's history I plan to write about is my own, but I'm happy for the opportunity to connect with other writers. If… Continue reading When in need, a friend beats technology.